Tuesday, October 27, 2009

Time fly's when you are having fun.

CDC day October 2009
Theme Halloween
***Note for November 2009, Meet at my house November 9th. Time: 9:30am to 2:30pm.
Bring a side dish or a treat to share. I will have lunch. Have not decided what I am going to fix yet.

These are the cards we walked away with this past month. They are all so awesome that I am having a hard time sending these away to friends and family.Haven't got a clue why some are sideways, sorry they were right side up before downloading.

This amazing tag came with some witches brew mix. that you add into your hot chocolate or coffee, which ever you want.

This card made me want to go out and buy this one. Just way too cute. Maybe a big hint to my family that is what they can get me for a stocking stuffer. I sure hope they read this...

These cricut cutouts just amaze me. Just use your imagination.

The sweet moon last night. Shinning through the clouds. It was so bright.
Emily Sweet 16. Oh where did the time go. She was just a baby the other day. She is everything I want to be when I grow up. Confident, outgoing, cheerful, positive, outgoing, caring and supportive. She doesn't care who you are on the outside she loves you for who you are.
These TWO are so goofy.
Love these too also.

Emily Party favors. I found these really cool water marbles and 2 packages for $3.00 made 12 favors and found the large flowers and a vase for $1.00 each. Total favor cost less that $3.00 each and the girls just loved them.

Emily's Sweet 16 cake. No I did not have time to make a cake but with these beautiful flowers I had to create this master piece.
3rd weekend in October I was able to go with Jeff to Coeur D'alene to an optometry conference that he was speaking at. A lot of people asked us why optometry? Well Jeff has Fabry's and this can be diagnosed early in youth if optometrists are educated on what findings are in the eyes. Jeff spoke regarding A patients perspective. Jeff was not diagnosed till April of 2003. (he has had this since birth) He was diagnosed with other problems that were not correct but, sounded good at the time. When he was diagnosed he was in advanced kidney failure and things just seemed to move so fast that it did not soak in right away what was happening, we just knew that this was not good and he was pretty ill at the time. He went from Biopsy's of the kidney's to dialysis the next week and then a diagnoses of Fabry's along with our two daughters. The girls are doing fine now and will cont. see a doctor to monitor kidney and heart functions long with all other systems. I learned more about this disease than the doctors. About 2 months later the FDA released a drug to help control this disease ( it doesn't make him better but makes things so they hopefully won't get worse.) So in July 2003 he started the infusions, he gets these every two weeks for the rest of his life. By the end of August of 2003 we received a call from the U of U stating his dad matched as a kidney donor. We were elated at the time. See he was doing dialysis 3 days a week about 4 hours at a time and infusions every other week which were about 5 hours long and still working full time. People tell me I am amazing woman. Well I can tell you I could not have done it without him, Those that know him he is so positive and upbeat about everything, he was so supportive of me when I just needed some time alone. Don't get me wrong he does have a soft side to him and he did shed some tears. Mainly of fear of what the future holds. He doesn't let on that he is having a bad day. Boy I sure do.!!! He has done well with all his trials and we pray to have him around for many years. I want to grow old with him.

Andrew our soccer kid. he is the one in the black on the right. He definitely can run and when he does he is fast. He coach challenged him to out run her and he did. She did not challenge anyone else.

Andrew our Soccer Player, His coach Megan made a comment to me about him one day, that "grin of his makes my day". "He is so positive and thoughtful of others".
Andrew is a good kid, full of energy. He makes me smile too.


charisse said...

I didn't know about all that. Well, I'm just glad to know that the Fabry's was found period! so they can help prevent it from getting worse. What day was Emily's birthday, I need to mark it on the calendar! It sounds like it was a lot of fun! You are a good mom to do all that for her...I never had such special treatment, I had to make and decorate my own cake since junior high! SAD, anyway... Is the Swine flu all gone? I hope so, we want to see you. Have a Happy Halloween!

Edwards Family said...

My kids are special, I don't remember many parties either. I did get a cake though. Yeah I hope the flu is gone. I still have a nasty cough. Hope to see ya soon. Oh and Ireland is such a cutie. She looks so cute in her costume.

Sherri said...

Stephanie, don't make me cry! You have both been amazing through your trials. We are so glad to have you guys for friends. Courtney had fun at Emily's party...you made everything look so pretty!

Edwards Family said...

Oh Sherri, I know why we are friends. I just adore you! I had to re-read my post to see what you cried about and then I cried. Wow, so hard to believe the things that are handed to us in this life and we just make the most of it. You were always there thru all my miscarriages too. I could not have done it without you and friends. Thanks Steph.

About US

Idaho Falls, Idaho, United States
I am a mother of 3 beautiful kids. 16, 14 and 9. I am pretty busy with the three all in different schools. I am married to a wonderful husband for 18 years and he works hard and has had many medical trials in the last 18 years. I tell him to quit being so tuff...God only gives you what you can handle. I continue to work night shifts at EIRMC with the best nurses around. I love my job most days. I get to meet great people. My husband works long hours too with BCSO, he gets to work days. We both love what we do. Enjoy reading about our crazy life that isn't any different from anyone else's.